Want to Check in on my Huntington's Disease?
 

Wanna follow my current HD?



I talk about my HD here. I am also considering creating a sub-channel where I talk about HD once/week on Wednesday.

Great stuff Abe, thanks for sharing. I think you are right on about having a way of documenting things over time. It could provide clues and data that may help researchers, and also can provide insight to others who are also diagnosed and are traveling the same path.

You look to be still be doing very well, and hope that you are able to keep continuing what you've been doing for as long as you can. Like you said, leave no regrets!

Thank you for sharing.

+1, in particular the documenting of everything over time.

I'm not sure why but was not able to hear audio on my desktop. But I reiterate what the others are saying - thanks for sharing (and staying positive)

Take care. From the outside it seems pretty amazing that it is progressing so slowly. It's brave to document the whole thing. If we can help, don't hesitate to ask.

Very brave to come out and document it. Keep it up!

Wow, kudos for sharing that takes courage and agree, very good idea to document. All the best my friend

Great stuff, Abe. I think you documenting this is a great way to help others but also yourself, as you mentioned. Inspirational work here, sir.

Glad you liked it!!!

Don't know if y'all saw but here is my follow up on my meds, Austedo. And it's giant, high cost!

Thank you for watching!!!

Yup!

What else could I be? :) If you are familiar with StrengthsFinder, then you'll understand this - my 2nd top strength is Positivity.

Thanks and I appreciate your kind thought!!!

Okay!

Sure thing!

Glad you like it!

I saw you post this (the first one) the other day on FB and i couldn't bring myself to watch until now as I thought maybe things had taken a turn. I'm glad I did. Very informative and inspiring.

Glad you watched it!


And that reminds me, if anyone would wannna be added to my personal Facebook, just let me know! It's https://www.facebook.com/abe.sargent

Abe

Friend request sent! (Rob Ordona)

Approved!

Holy hell that's a pricey pill

Hello! Here is my 3rd update about the mental aspects of the condition.

Yup!

Just watched the first two and wanted to chime in - you speak in a way that naturally engages the viewer and makes a really personal subject, about a condition which I had not previously heard of, engaging.

Kudos, and hope the insurance company steps up!

And after #3 I can see why you come across so well - you’re a certified G!

A few things on this last one:

Really like the tie!

If you ever have a film about your life, Toby Maguire needs to play you!

The memory thing’s difficult - a lot of what you mentioned about having to make lists, getting people to email you rather than remembering tasks, forgetting things, some of that’s possibly just getting older too - I’m 2-3 years older and I’m similar in this particular regard: but I was never a 145 IQ and double post grad top student!
It would be interesting to know, but impossible to find out how much of this is the HD and how much it’s just getting older.

Again, really interesting and insightful stuff.

This is one of the more impressive things that I have seen. Abe, it is amazing that you are doing this - not only to document it for yourself (and family), but also to help others dealing with it. I will be following along and wish you the best!

Glad you like it!

I lol'ed at most of your comments!

Glad you like it, and thanks!

As an update, the insurance company is covering Austedo fully no co-pay!

That's good news man!

Awesome news!

Daang Abe, you're a sharp dresser! omg, that tie, I mean c'mon!!! You look great. It's nice to finally put a face with a name :)

It takes a lot of courage to put yourself out there and I think you're incredibly brave. Thanks for letting us follow in your journey.

And also, you mentioned not even having 250 followers. Well you now have 267 ;)

I was kind of thinking Woody Harrelson

Great news!

True!

Yup!

What's it like to play D&D with HD?

Mental Health Check In

Why have I chosen to remain childless and single? Find out here!

This is some deep stuff Abe, appreciate you sharing and spreading and understanding, as well as your outlook.

Sure thing, glad you enjoy it!

Abe

Hello! I hope y'all are having a safe and great day today! As someone with HD who travels a lot, I posted this YouTube video about what that's like, if you are so inclined to check it out. Have a great day!

What is it like to live at home with HD?

Hello all! I hope you are being safe and well today! What is it like to work with H.D.? Want to find out?

Hello folks! I hope you are having a safe and productive Saturday! What is it like job hunting with Huntington's Disease? Wanna find out?



This is probably the issue where I talk the most about my self/ Enjoy!

Hello! I hope that your day is going safely and well! Today I want to examine my fears as someone living with H.D. I try to be very open with you. Let me know what you think!

Hello all! I hope you are well! Ever wonder how I stay positive with my H.D.? Wonder no longer!