Thread: F*^$ Cancer
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Old 01-12-2022, 07:48 PM   #784
JonInMiddleGA
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Join Date: Nov 2000
Location: Behind Enemy Lines in Athens, GA
Yeah, I'm dolaposting ... but I believe it's warranted.

So superdoc snuck by to see my wife this evening, bearing the report from her PET scan earlier in the day

"I don't know how you keep doing this ... your scan is BEAUTIFUL. The brain tumor is the ONLY thing that lights up"

Not even her hip -- which we were certain of (cause exactly the same issues before chemo started) isn't hot. His guess, pending the CT to confirm? Bone spur and / or floating residue from the repair surgery.

New plan
1) brain surgery next week -- delaying a couple days to try to get her added to a very promising clinical trial for after treatment
2) recover
3) single 40 mins dose of radiation to her head, to squash any stray cell that might fall off during the surgery
4) start chemo pills as planned
4b) adding immunotherapy every 3 weeks TFN as a secondary preventative

There are a couple of minor issues to watch. Her adrenal system seems to be pretty wonky and there's a vague shadow on her spine but "I'm pretty hopeful that the pill & immuno will squash all of that pretty quickly"

Gang, that conversation was not even among the dozens of possible outcomes for today. Literally not even a consideration for us in our wildest imaginings.

Yeah, there's still a friggin tumor camped on her brain so it's not like "cool, gtg" buuuut ... indescribably better than what we could have hoped (much less feared)
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