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Old 08-23-2017, 02:47 PM   #201
Breeze
Grizzled Veteran
 
Join Date: Oct 2002
Location: Northern Suburbs of ATL
August 23, 2017

I had my visit to Emory today for the start of Cycle 14, but as expected my time on the clinical trial has come to an end. The doctor explained that the appearance of 6 spots indicates the brain is "bad soil" and that without making a change the spots will start to appear with more regularity. I'm being put on the stage 2 drug for ALK mutations, but it'll be about 10 days to 2 weeks before insurance approves the change and I can start taking the drug. I'll have to finish out my paperwork and scans for end of trial information, but once that is completed I'll just be taking a drug a couple of times a day and I'll go in for regular blood work and scans (with blood work more frequent in the early days of the new drug being introduced to my system).

Looking back on my time on the trial - I was extremely pleased that the drug was initially very effective and that the side effects were minimal. However, I was hoping and praying the trial would last longer than it did.
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