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Old 11-18-2008, 10:43 PM   #1
Lathum
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Prayer request

My 9 year old niece was diagnosed with long QT syndrome, which is the disease that causes seemingly healthy kids to drop dead on the playground/ sports field.

They found in because she needed an EKG for something else. She has to go into the hospital tomorrow for 3 days so they can get her meds figured out.

My sister is a widowed mom and this has really taken a toll on her. The doctors say that she will be ok and it's a good thing they caught it. Still, the thought of her in the hospital is very disheartining to me. I helped raise her and she is the closest thing I have to a child of my own.

Please say a little prayer for her since every little bit helps.


Last edited by Lathum : 11-19-2008 at 08:52 AM.
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Old 11-18-2008, 10:46 PM   #2
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Best wishes to your niece and to you. We will pray for her.

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Old 11-19-2008, 07:54 AM   #3
KWhit
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So sorry to hear this, Lathum. Best of luck to you and your family.
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Old 11-19-2008, 07:58 AM   #4
Eaglesfan27
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Unless the QTC is very long, this usually isn't too serious. I know a lot about it because some psychiatric medications can prolong the QTC. However, she will have to be careful the rest of her life that she doesn't take any medications that prolong it further. That being said, she will certainly be in my prayers.
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Old 11-19-2008, 08:04 AM   #5
BYU 14
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Will definitely say a prayer for your niece.

As EF27 says it can be relatively benign as long as the QTC is not too long. My Mother was diagnosed with this in her thirties and is now 62 and it has been totally manageable. Thank god they caught it early.

Last edited by BYU 14 : 11-19-2008 at 08:04 AM.
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Old 11-19-2008, 08:13 AM   #6
Telle
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She'll be in my thoughts.
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Old 11-19-2008, 08:15 AM   #7
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She's in my thoughts Lathum...
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Old 11-19-2008, 08:34 AM   #8
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she's in my thoughts too, best wishes.

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Old 11-19-2008, 08:37 AM   #9
Marc Vaughan
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she's in my thoughts, very sorry to hear this.
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Old 11-19-2008, 08:43 AM   #10
Dr. Sak
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I will be praying for her.
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Old 11-19-2008, 08:43 AM   #11
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Your niece will be in my thoughts.
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Old 11-19-2008, 08:51 AM   #12
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Your niece is in my thoughts Lathum.
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Old 11-19-2008, 08:54 AM   #13
Lathum
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Quote:
Originally Posted by Eaglesfan27 View Post
Unless the QTC is very long, this usually isn't too serious. I know a lot about it because some psychiatric medications can prolong the QTC. However.

This is how they found out, they were gonna put her on Ritalin (sp?) so they did an EKG before hand and discovered this.


Thanks everyone for your continued prayers.
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Old 11-19-2008, 08:58 AM   #14
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Sorry to hear this Lathum. She'll be in my thoughts/prayers
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Old 11-19-2008, 09:12 AM   #15
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Sorry to hear, she and your family will be in my thoughts.
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Old 11-19-2008, 09:23 AM   #16
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Good luck to your niece and the rest of the family.
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Old 11-19-2008, 09:30 AM   #17
dolfin
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Your niece is in my thoughts as well.
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Old 11-19-2008, 10:14 AM   #18
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She will be in my prayers.

All the best to you and your family.
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Old 11-19-2008, 11:53 AM   #19
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Sorry to hear about your niece. My thoughts go out to your niece, sister, you and your family.
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Old 11-19-2008, 06:14 PM   #20
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That's rough, man. Make sure to be there for your sister and good luck to your niece!
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Old 11-19-2008, 07:29 PM   #21
Eaglesfan27
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Quote:
Originally Posted by Lathum View Post
This is how they found out, they were gonna put her on Ritalin (sp?) so they did an EKG before hand and discovered this.


Thanks everyone for your continued prayers.


Lucky that the doc who was going to do this actually did an EKG. I'm apalled at how many of my colleagues don't ever order an EKG before putting kids on stimulants such as Ritalin, despite some good evidence that it should be done as a routine screening before starting a stimulant. I won't start any stimulant until I get the results of an EKG.
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Last edited by Eaglesfan27 : 11-20-2008 at 06:48 AM.
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Old 11-19-2008, 07:45 PM   #22
terpkristin
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Wow, that's gotta be scary for any parent. Glad they caught it, but I'll keep her in my thoughts. And your sister.

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Old 11-19-2008, 08:10 PM   #23
Schmidty
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Prayers sent buddy.
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Old 11-19-2008, 08:20 PM   #24
Bad-example
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Sending good thoughts.
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Old 11-19-2008, 08:48 PM   #25
MizzouRah
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She is in my thoughts and prayers Lathum.
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Old 11-19-2008, 09:22 PM   #26
Lathum
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Thanks everyone. So far so good. She got settled into her own room and she didn't have to wear a gown so she is comfy. The room also has a pull out chair/sleeper so my sister will be comfy. She had pizza and chickef fingers for lunch so she probably won't want to come home!

So everything seems ok so far, thanks everyone for your kind words.
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